The Alliance to Prevent Legionnaires Disease (501c4) strives to reduce the occurrence of Legionnaires’ disease by promoting best practices and policy for its prevention.
We Advocate For...
Providing the public—with special regard for patients—the best available information on Legionnaires’ disease.
Requirement for prompt notification to communities of possible higher Legionella levels in the public water supply due to significant disruptions, including water main breaks, infrastructure changes and severe weather.
Increased government and private research on Legionella and disease prevention.
Improved water quality from source-to-tap with greater investments in infrastructure to ensure consistently safe water quality throughout the public water distribution system to residences and buildings.
Mandated use of CDC investigation protocols by public health officials to determine root causes of outbreaks and sporadic cases of Legionnaires’ disease.
Widespread voluntary adoption of the Legionnaires’ disease prevention best practices found in ASHRAE Standard 188 or the CDC Water Management Toolkit.
Voice of the Victims
It’s been 6.5 years now and I still struggle with long term memory loss. It took over a year before I was able to work again. The reports say I was completely dependent on life support to keep me breathing…without it I would have died. I spent the next three months in and out of hospitals.
My ex-uncle-in-law is dying from Legionnaires disease. Why can’t they give him a lung transplant? They’re so desperate that he was put in a coma and given steroids. They say he would die if they try to open his chest.
My next door neighbor was diagnosed officially as having Legionnaire’s disease. He started being very sick for about a week at home and then finally went to the ER unable to breath very well. He woke up from a coma six days later.
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*Prevent Legionnaires and its employees have used their best efforts in preparing these pages. PL makes no warranty of any kind, expressed or implied, with regard to the content, quality, performance, transmission, or any other aspect of the information contained here. PL shall not be liable for any damages, including consequential damages, in connection with, or arising in any manner out of, the providing of the information offered here.
The Alliance to Prevent Legionnaires’ Disease is deeply concerned about the sporadic Legionnaires’ cases announced recently by health departments across the country. This summer alone, there were 107 cases across Michigan, 49 cases in Chicago, Illinois, and 8 cases in Essex County, New Jersey. Rhode Island also announced 30 cases since the beginning of June, a significant increase over recent years.
Sporadic Legionnaires’ disease cases, those not associated with an outbreak – defined as two or more cases from a common source or location– comprise 96% of all LD cases. Typically, sporadic cases do not receive full investigations, missing critical opportunities to properly identify the root cause of an individual’s illness. This also prevents a better understanding of the bacteria’s presence in our homes, workplaces and public water distribution systems, which means we are always chasing the next case, rather than preventing it.
The Alliance to Prevent Legionnaires’ Disease is urging public health officials responding to Legionnaires’ diseases cases to thoroughly investigate every case, as we recently called for in Michigan. Investigations should look comprehensively at recent conditions that could upset local water systems and water source changes that could affect the water’s chemistry and system dynamics so the water that millions use and consume every day is safe and free from legionella, the bacteria that causes Legionnaires’ disease.